We were ecstatic and relieved to finally get Asher home. At this point, his care was the same as any other 5 week old baby. The only exception was the constant worry about his future and a few minor issues. He had a right thumb abduction and had to wear a neoprene splint (he started wearing this in the NICU on the advice of pediatric occupational therapist) and he also had torticollis (a problem where he tilted he head back).
Asher seemed to thrive with being in a loving home and loved being around his older brother Parker. There were still obstacles we faced: he didn't eat as much as he should have, his sleeping patterns were inconsistent with sleeping only in 30 minute increments (even through the night!).
We found out that Asher had acid reflux and was put on prevacid to help control this.
Asher continued to be monitored closely by his Neurologist and Neurosurgeon, and had several EEGs, MRIs, CT Scans to check for siezures and ???(it's been a while...)